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为罕见病患者撑起“防护伞”,松江这家企业传递“向善而行”正 ...
4月22日,松江企业素湃科技(上海)有限公司收到一封来自月亮家庭着色性干皮病关爱中心的感谢信。原来,不久前,企业向中心捐赠了一批防晒布料,为着色性干皮病患者群体带去温暖与希望,传递出“向善而行”的强大正能量。着色性干皮病是罕见病症,由于基因缺陷,患者 ...
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