Three years ago today Wesley had his last cluster of seizures. His seizures were focal seizures and presented as very stereotypical frontal lobe seizures. (Head and eye movement to one side, arms to the other, screaming, unresponsive) They were scary and always many in a short period of time. At this point we don’t know if he’s grown out of them or if his medication is keeping them at bay, but either way he’s doing well and we’re all happy! #foxg1 #foxg1awareness #foxg1syndrome | Tori Goes Outsi

⚠️TW: Seizures⚠️ It’s been a WHOLE year since this terrible day. I can’t believe that some kids have this type of seizure on a regular basis. It was absolutely terrifying and we are so grateful he has not had one since. He’s had what we think are focal or partial seizures this past year but he hasn’t had ANY episodes for several weeks. You may have noticed that he’s been gaining new skills suddenly and I really believe it’s because he’s not currently having seizures. We are hopeful his seizure m